The fifth edition of the DigitalHealthEurope (DHE) Digest features the DHE recommendations for the European Health Data Space (EHDS). The DHE consortium is honoured and excited to be part of the creation of this future data environment for health, since it has such a huge potential to innovate Europe’s health and care system after the COVID-19 pandemic.
The European Commission is defining the proposed content of the EHDS in a specific legal framework up until the end of 2021. The aim of the data space is to facilitate the sharing and use of Real World Health Data both in and, especially, beyond healthcare. For almost two years, DHE has been involved in intense consultations with nearly 140 stakeholders and experts from diverse areas. Now, DHE has put together in one spot all that informative information-gathering. It has developed a potential vision for the common EHDS. Although the space has yet to be fully defined, there has nevertheless been a good level of alignment among all the experts’ opinion
The DHE recommendations address three significant transition challenges identified for the EHDS:
► From privacy protection to citizen protection.
► From “citizen as data subject” to “citizen as key change agent in the health data ecosystem”.
► From policy and regulatory frameworks to engagement, adoption and implementation.
The DHE recommendations are anchored in the ‘spirit’ of the Data Governance Act, through these two principles:
► Citizens drive demand for FAIR (Findability, Accessibility, Interoperability, and Reusability) data.
► Data is for the public good.
Furthermore, the digest covers 32 concrete proposals for action developed by DHE, information on the upcoming DHE Summit and a feature of the DHE twinning project in the Healthmanagement.org Journal.
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