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Joining the Dots Conference 2019: Ensuring better data for person-centred health and research

Brussels, Belgium

27-28th of November 2019

The European Institute for Innovation through Health Data (i~HD) has organised a conference on joining the dots to make a powerful impact for more person-centred health and care, optimised research and Learning Health Systems through the reuse of better data. 

The conference gathered seven leading European initiatives to exchange use cases, insights, successes and challenges.

DigitalHealthEurope contributed with multi-stakeholder expertise to help shape actionable policy recommendations. The main goal was to finalise a list of forceful calls to action for European Health Ministries which was presented to the eHealth Network meeting during the second day of the conference.

Participants took part in three of the six parallel sessions. The afternoon sessions on Thursday 28th had focus on how EHR systems can be adapted to guide clinicians and patients to manage multimorbidity, started with lunch-time demonstrations of C3-Cloud project’s clinician and patient Solutions.

Calling all patient organisations, health professionals, healthcare providers and payers, research organisations, EHR system vendors and standards bodies to participate in a hands-on and interactive think-tank conference!

Organiser: i~HD in collaboration with DigitalHealthEurope and several other EC funded projects (C3 Cloud, Trillium II, eHAction, EHDEN and EHR2EDC)

 

Agenda

 

Wednesday, 27th November

8:30

Registration, coffee

9:00

Welcome, conference objectives and project co-ordinators

Facilitator: Dipak Kalra, i~HD

- C3-Cloud: Theo Arvanitis, University of Warwick
- Trillium II: Catherine Chronaki, HL7 Europe
- Digital Health Europe: Veli Stroetmann, empirica
- eHealth Action: Henrique Martins, SPMS
- EHR2EDC: Nadir Ammour, Sanofi
- EHDEN: Nigel Hughes, Janssen

10:00

Parallel sessions 1 and 2 (with mid-point coffee break)

 

10:00

Parallel session 1

Promoting the capture, interoperability and quality of high value data sets across Europe: cross standards alignment, data quality, cross-border access for care and research

Facilitators:
- Christel Daniel, AP-HP
- Catherine Chronaki, HL7 Europe

 

Parallel session 2

Educating and empowering patients about access and use of health data in self-care, prevention and for research

Facilitators:
- Lyudmil Ninov, EPF
- Nhu Tram, AGE-PLATFORM

 

12:30

Lunch and networking

13:30

Parallel sessions 3 and 4 (with mid-point coffee break)

 

13:30

Parallel session 3

Federated data networks for scaling up research and healthcare quality improvement

Facilitators:
- Nigel Hughes, Scientific Director, Janssen Clinical Innovation – Patient Data for Research
- Nadir Ammour, Sanofi

Parallel session 4

The societal challenges of multimorbidity and polypharmacy, harmonising guidelines,
personalising care and refocusing research

Facilitators:
- Theo Arvanitis, University of Warwick
- Sonja Müller, empirica
- Leo Lewis, IFIC

16:00

Plenary review of each group’s recommendations
Facilitator: Dipak Kalra, i~HD

17:00

Finalising the calls to action for the eHealth Network

Facilitator: Henrique Martins, Chair of the eHealth Network

17:30

Free time/fresh up

19:00

Conference dinner

 

   

 

 

 

 

 

Thursday, 28th November

8:30

Registration, coffee

9:00

Parallel sessions 5 and 6 (with mid-point coffee break)

 

9:00

Parallel session 5

Addressing the legal and ethical challenges of digital health

Facilitators:
- Petra Wilson, Health Connect Partners, DigitalHealthEurope legal expert
- Ava Lloyd, FTI
- Zoi Kolitsi, DigitalHealthEurope
- Diane Whitehouse, EHTEL, DigitalHealthEurope

 

Parallel session 6

Boosting digital transformation of health and care: scaling up and evaluation

Facilitators:
- Veli Stroetmann, empirica, DigitalHealthEurope
- Jose Usero, Funka
- Valentina Tageo, ECHAlliance
- Strahil Birov, empirica
- Francisco Lupiañez, Open Evidence
- Representatives of Reference Sites of the EIP on AHA

11:50

Reflection on the outcomes of these sessions

 

Birgit Morlion, eHealth, Well Being and Ageing, DG Connect, European Commission

 

12:00

Rolling lunch and demos

12:00

C3-Cloud spotlight on multimorbidity-ready EHR's with live demonstrations in the lunch area

 

14:00

C3-Cloud spotlight on multimorbidity-ready EHR's

- Discussion of the business drivers for health system investments in better multimorbidity solutions
- Discussion of how the solution and its components can be adopted by EHR system vendors

Facilitator: Theo Arvanitis, University of Warwick

15:00

Coffee break, Report back from the eHealth Network: responses to our calls to action

15:30

Continuation of C3-Cloud spotlight on multimorbidity-ready EHR's

- Discussion of the business drivers for health system investments in better multimorbidity solutions
- Discussion of how the solution and its components can be adopted by EHR system vendors

Facilitator: Theo Arvanitis, University of Warwic

   

16:00

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